Steve Nash has been a busy, charitable and inventive man this summer. Recently, Nash urged the Provincial Ministries of Health to fund Enzyme Replacement Therapy through YouTube. Nash recorded the video at the request of his longtime friend affected with MPS II Simon Ibell.
MPS II also known as Hunter syndrome is an enzyme disorder that affects about 40 people nationwide.
Nash who is a British Columbia native, hopes to have the Ontario government join other provinces already funding Enzyme Replacement Therapy.
If you would like to show your support for a good cause, please sign the ipetition or join the Simon Ibell Petition for Hunter Syndrome (MPS II) Treatment Facebook group for more information.
Great post! I hope others will follow in your foot steps to raise awareness for change.
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[…] at his alma mater Santa Clara University. This summer Nash also raised public awareness about Hunter Syndrome, with his high school friend affected by the rare disease Simon […]